The 20 Best Neurofibromatosis Doctors Near Me in Grand Rapids, MI

Find the Top Neurofibromatosis Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 54 doctor with experience in Neurofibromatosis near Grand Rapids, MI. Of these, 43 are Experienced, 9 are Advanced and 2 are Distinguished.

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54 providers found
    Distinguished in Neurofibromatosis
    Pediatrics | Surgical Oncology
    Distinguished in Neurofibromatosis
    Pediatrics | Surgical Oncology

    Corewell Health Orthopedic Oncology - Lemmen-Holton

    145 Michigan Street Northeast, Suite 5500, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Steensma is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement. Dr. Steensma is board certified in American Board Of Orthopaedic Surgery. Dr. Steensma is currently accepting new patients.

    Advanced in Neurofibromatosis
    Pediatric Hematology Oncology
    Advanced in Neurofibromatosis
    Pediatric Hematology Oncology

    Helen DeVos Children's Hospital Hematology And Oncology

    100 Michigan Street Northeast, Floor 10, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients

    Albert Cornelius is a Pediatric Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 44 years. Dr. Cornelius is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Medulloblastoma. Dr. Cornelius is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology - 1992. Dr. Cornelius is currently accepting new patients.

    Distinguished in Neurofibromatosis
    Internal Medicine
    Distinguished in Neurofibromatosis
    Internal Medicine

    Corewell Health Grand Rapids Hospitals Academic Medicine Associates - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    33+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Bernard Eisenga is an Internal Medicine provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 33 years. Dr. Eisenga is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Hypertension, Legius Syndrome, and Obesity in Children. Dr. Eisenga is board certified in American Board Of Internal Medicine. Dr. Eisenga is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Grand Rapids Hospitals Neurology - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    30+ years
    Languages Spoken:
    English

    Cynthia Hingtgen is a Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 30 years. Dr. Hingtgen is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS). Dr. Hingtgen is board certified in American Board Of Psychiatry And Neurology.

    Advanced in Neurofibromatosis
    Pediatric Neurology
    Advanced in Neurofibromatosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Advanced in Neurofibromatosis
    Pediatric Neurology
    Advanced in Neurofibromatosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Cook is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2020 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2019. Dr. Cook is currently accepting new patients.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 17 years. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Legius Syndrome, Esotropia, and RASopathies. Dr. Conley is board certified in American Board Of Ophthalmology.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English

    Lauren Fletcher is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 13 years. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Astigmatism. Dr. Fletcher is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in Neurofibromatosis
    Advanced in Neurofibromatosis

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    37+ years
    Languages Spoken:
    English

    John Winters is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 37 years. Dr. Winters is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, CHARGE Syndrome, Koolen De Vries Syndrome, and Early Infantile Epileptic Encephalopathy. Dr. Winters is board certified in American Board Of Pediatrics.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    14+ years
    Languages Spoken:
    English

    Sara Constantine is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 14 years. Dr. Constantine is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, Menkes Disease, Esophagitis, and Neurofibromatosis. Dr. Constantine is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Nathan Patterson is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 12 years. Dr. Patterson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Esophagitis, Type 1 Diabetes (T1D), Hepatoblastoma, and Arteriovenous Malformation. Dr. Patterson is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English

    Benjamin Braun is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 19 years. Dr. Braun is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His clinical expertise encompasses Esophagitis, Chronic Inflammatory Response Syndrome (CIRS), Type 1 Diabetes (T1D), and Neurofibromatosis. Dr. Braun is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in Neurofibromatosis
    Pediatric Hematology Oncology
    Experienced in Neurofibromatosis
    Pediatric Hematology Oncology

    Helen DeVos Children's Hospital Hematology And Oncology

    100 Michigan Street Northeast, Floor 10, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    39+ years
    Languages Spoken:
    English
    Accepting New Patients

    Deanna Mitchell is a Pediatric Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 39 years. Dr. Mitchell is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Neuroblastoma, Hemophilic Arthropathy, Hemophilia A, and Hereditary Neuroblastoma. Dr. Mitchell is board certified in American Board Of Pediatrics, Pediatric Hematology-Oncology - 1994. Dr. Mitchell is currently accepting new patients.

    Experienced in Neurofibromatosis
    Neurosurgery
    Experienced in Neurofibromatosis
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English
    Accepting New Patients

    Todd Vitaz is a Neurosurgery provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 31 years. Dr. Vitaz is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is board certified in American Board Of Neurological Surgery. Dr. Vitaz is currently accepting new patients.

    Experienced in Neurofibromatosis
    Pediatrics | Ophthalmology
    Experienced in Neurofibromatosis
    Pediatrics | Ophthalmology

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    35+ years
    Languages Spoken:
    English

    Buhilda Mcgriff is a Pediatrics specialist and an Ophthalmologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 35 years. Dr. Mcgriff is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, Retinopathy of Prematurity, and Isolated Duane Retraction Syndrome. Dr. Mcgriff is board certified in American Board Of Ophthalmology.

    Experienced in Neurofibromatosis
    General Surgery
    Experienced in Neurofibromatosis
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Casey Madura is a General Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Madura is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation Type 2, Chiari Malformation, Chiari Malformation Type 1, Hydrocephalus, and Craniectomy. Dr. Madura is board certified in American Board Of Neurological Surgery.

    Experienced in Neurofibromatosis
    Pediatric Orthopedics
    Experienced in Neurofibromatosis
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Kemppainen is a Pediatric Orthopedics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 19 years. Dr. Kemppainen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Clubfoot, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome. Dr. Kemppainen is board certified in American Board Of Orthopaedic Surgery and American Board Of Orthopaedic Surgery. Dr. Kemppainen is currently accepting new patients.

    Experienced in Neurofibromatosis
    Pediatric Hematology Oncology
    Experienced in Neurofibromatosis
    Pediatric Hematology Oncology

    Corewell Health Grand Rapids Hospitals Pediatric Cancer Hematology - 35 Michigan St NE

    35 Michigan Street Northeast, Floor 2, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    41+ years
    Languages Spoken:
    English
    Accepting New Patients

    Sharon Smith is a Pediatric Hematologist Oncology provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 41 years. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Hereditary Spherocytosis, Acute Lymphoblastic Leukemia (ALL), Febrile Neutropenia, and Simpson-Golabi-Behmel Syndrome. Dr. Smith is board certified in American Board Of Pediatrics. Dr. Smith is currently accepting new patients.

    Experienced in Neurofibromatosis
    Pediatric Orthopedics
    Experienced in Neurofibromatosis
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    22+ years
    Languages Spoken:
    English
    Accepting New Patients

    Philip Nowicki is a Pediatric Orthopedics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 22 years. Dr. Nowicki is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Slipped Capital Femoral Epiphysis, Clubfoot, Beukes Familial Hip Dysplasia, and Spastic Diplegia Infantile Type. Dr. Nowicki is board certified in American Board Of Orthopaedic Surgery. Dr. Nowicki is currently accepting new patients.

    Showing 1-20 of 54

    Last Updated: 04/28/2026

    When should I see a Neurofibromatosis doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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